Wednesday, June 2, 2010

Fundraising for CCSVI

I fully support what Buffalo Neuroimaging Analysis Center (BNAC) is doing to research CCSVI. By participating in their self-pay CCSVI Database Study, I helped them with their research in several ways. I added data to their growing set of CCSVI data to help make the correlation between vein issues and MS. In addition, a small amount of my fee will go towards helping them continue their research. I've also donated to one MStery Party, and will be attending another.

The best way I can help now (I don't have unlimited funds!) is to continue to spread the word about what BNAC is doing, and how you can help them financially. Their total study cost is $5 million. Hopefully they will get funds from some big donors.

In the meantime, they are asking individuals to help by holding MStery parties. This can be a party held at a restaurant or park, or it can be a virtual party. If an individual party raises more than $1,000 there is a matching grant of $1,000 from the Direct-MS Foundation (Ashton Embry's organization). Check here for more information about hosting a MStery party: BNAC MStery party.

Here are a few of the MStery parties I'm aware of:

Jill and Larry Nolan are hosting a MStery party potluck picnic in Edwardsville, IL on June 13, 2010. If you're in the greater St. Louis area, please consider attending. If you can't attend, please consider making a donation and be a 'virtual' partygoer: Jill and Larry's party. Follow the instructions for online donations.

Jackie Roberts is hosting a MStery party, called 'Festa per la Salute' (Party for Health) at The Pink Door in Seattle on June 27, 2010. The cost is $100 per ticket, and 70% of the ticket price will be donated to BNAC. In addition, participants can make a tax-deductible donation directy to BNAC at the party. For more information: Jackie's Pink Door Party.

Flowers 4 MS is supporting BNAC in a big way. Angela has raised, at last count, over $6,000 for BNAC. I ordered a t-shirt and cards from her recently, and am impressed with her fundraising efforts. She is an amazing woman, and has some great Italian to English translations of important CCSVI documents out of Italy on her Flowers 4 MS Facebook page.. Back to the fundraising: if you'd like to support Flowers 4 MS and BNAC, here is her site where you can order beautiful greeting cards, t-shirts and other items: Flowers 4 MS.

Stay tuned for more posts. I'll be expanding my site by adding a few pages (for example see the 'honeybees' placeholder at the top...) and will have a page that is dedicated to fundraising.

Thanks for your support!

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